Scleroderma Stories Issue 1
When were you diagnosed with scleroderma?
I think I have had scleroderma for a while, but the disease never manifested itself until I got older. When I was younger, I was diagnosed with “IBS.” I have hypothyroidism, and I had bad kidneys as a child and was hospitalized… it’s like I have been in and out of doctors’ offices for my whole life, but who knows? That’s the worst thing about this disease – it doesn’t give any answers on what caused it. Hopefully, there will be a cure in the future.
I first got diagnosed with scleroderma back in October of 2018. Before being diagnosed, I had developed these two dark tight spots on my sides. They matched each other. They spread very quickly down the trunk of my body to my thighs, calves, and feet, then up around my chest area and to some underneath my left eye. As of late, I have it traveling down both my arms as well, which has made my arms very weak. I find it hard to lift them above my head now.
What led to your diffuse scleroderma diagnosis?
How has this disease affected you physically or mentally?
What advice do you have for those with scleroderma or other chronic illnesses?
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Are you a scleroderma warrior? We’d love to interview you for Scleroderma Stories! Please visit tinyurl.com/share-my-sclero-story or email us at firstname.lastname@example.org