Antonio, Texas (United States)
Scleroderma Stories Issue 1
Could you please tell us a little about yourself?
I am 36 years old, and I was diagnosed with scleroderma in 1997 at the age of 14. My pulmonary involvement started at the age of 17, and it has been quite a journey.
I am a huge advocate for the scleroderma community. My hobbies include decorating and coordinating events and fundraisers. I have also traveled to several different places to share my story with others. I truly enjoy spreading awareness, because it is so important. If I can talk to at least one person a day about this disease, then I’ve done my job. Everyone needs to know about the signs and symptoms and be aware.
I was born and raised in San Antonio, Texas, in which I still reside. I am a wife and mother to two amazing boys. My family has been such a huge supporter of my journey. In our culture, family gets involved in everything, and they have always been so involved with my awareness efforts. I’m so blessed to have them, and they are a huge reason why I don’t give up.
What led you to take such an active role in spreading awareness?
Could you please share what led to your diagnosis?
What effect did scleroderma have on your childhood?
How have you made changes to your lifestyle or mindset?
What is the most difficult part of living with scleroderma?
Could you please describe the events leading up to and following your life-saving transplant?
What else did this “second chance at life” change for you?
What advice do you have for those with scleroderma or other chronic illnesses?
Be sure to follow us on Instagram and Facebook (@sclerounited) to see more scleroderma warriors’ journeys in our weekly Sclero Sunday series.
Are you a scleroderma warrior? We’d love to interview you for Scleroderma Stories! Please visit tinyurl.com/share-my-sclero-story or email us at email@example.com