Skip to content

ABOUT US

In Memory of Lee Yu Chuan

OUR FOUNDING

Cosette and Grandpa Scaled

In Memory of Lee Yu Chuan

In October 2018, Lee Yu Chuan was diagnosed with diffuse cutaneous systemic sclerosis after months of shortness of breath and Raynaud’s symptoms. He passed away four months later. Scleroderma United was founded as the Scleroderma and Fibrotic Diseases Foundation (SFDF) in 2019 by his granddaughter, Cosette Wu, a 16-year-old student at the time. After witnessing her grandpa’s battle with scleroderma, she sought to address the lack of support for people like him. 

In Memory of Lee Yu Chuan

OUR FOUNDING

Cosette and Grandpa Scaled

In October 2018, Lee Yu Chuan was diagnosed with diffuse cutaneous systemic sclerosis after months of shortness of breath and Raynaud’s symptoms. He passed away four months later. Scleroderma United was founded as the Scleroderma and Fibrotic Diseases Foundation (SFDF) in 2019 by his granddaughter, Cosette Wu, a 16-year-old student at the time. After witnessing her grandpa’s battle with scleroderma, she sought to address the lack of support for people like him. 

In 2023, The SFDF relaunched as Scleroderma United to reflect our refined mission of connecting and empowering scleroderma warriors. Our student-led team of board members spanning 13 countries is dedicated to fostering a truly united global scleroderma community. 

Hear more about Scleroderma United and our founding story
in this Mobil’s Mobcast podcast episode featuring Cosette!

Meet The Team

OUR BOARD

Located across 13 countries, each and every one of Scleroderma United’s Board Members is dedicated to our mission of connecting and empowering scleroderma warriors around the world.

Executive Board

Cosette Wu Headshot 2023

Cosette
Wu

Founder & President
Hawaii, USA

Khushboo Shukla

Khushboo
Shukla

Vice President
Texas, USA

Screen Shot 2023-07-28 at 10.05.28 AM - Eshika Kudaravalli-fotor-20230728164227

Eshika
Kudaravalli

Executive Director of Scleroderma Stories
Alabama, USA

Helmi Hietanen Scaled

Helmi
Hietanen

Director of Interviews
Helsinki, Finland

Aditya Sil Square

Aditya
Sil

Director of Editing
Kolkata, India

Matthew Nguyen Square

Matthew
Nguyen

Director of Design
Melbourne, Australia

Shreya Goel

Shreya
Goel

Director of Diversity
North Carolina, USA

Atharv Prajod Square

Atharv
Padmalayam

Executive Director of Education Programs
Wisconsin, USA

Grace Doyle Square

Grace
Doyle

Director of Children & Young People Programs
Pennsylvania, USA

Ruhana Square

Ruhana
Shewtee

Director of Accessibility Resource Programs
London, England

Interview Board

Tasmia Rahman

Tasmia
Rahman

Minsk, Belarus

Dev Kumar Sharma

Dev Kumar
Sharma

Minsk, Belarus

Alexander Adams

Alexander
Adams

Georgia, USA

Homa Ghavifekr

Homa Aminzadeh
Ghavifekr

Tabriz, Iran

Richard Ren

Richard
Ren

New York, USA

Maria Komissovskaya Square

Maria
Komissovskaya

Moscow, Russia

Sanjana Anand Resized

Sanjana
Anand

California, USA

Shourya Kashyap

Shourya
Kashyap

Texas, USA

Casen Whitehead

Casen
Whitehead

North Carolina, USA

Anoohya Panidapu

Anoohya
Panidapu

California, USA

Hitesh Suthar

Hitesh
Suthar

Sumerpur, India

Editing Board

Taibia Rahman

Taibia
Rahman

Tbilisi, Georgia

Ryan Rajeev

Ryan
Rajeev

Tbilisi, Georgia

Gayatri Dhir

Gayatri
Dhir

Singapore, Singapore

Talya Jeter Resized

Talya
Jeter

Ohio, USA

Janice Wong Resized

Janice
Wong

London, England

Jayani Srinivasan

Jayani
Srinivasan

California, USA

Kalyan Sankar

Kalyan
Sankar

Oregon, USA

Design Board

Mikayla Machado

Mikayla
Machado

Toronto, Canada

Jenny She

Jenny
She

Michigan, USA

Ioana Murgulet

Ioana
Murgulet

Texas, USA

Education Board

Caden Lombard

Caden
Lombard

Hawaii, USA

Barbara Afram

Barbara
Afram

Red Deer, Canada

Sandhya Sanapala

Sandhya
Sanapala

Connecticut, USA

Trisha Natarajan

Trisha
Natarajan

New Jersey, USA

Snigdha Barua Square

Snigdha
Barua

California, USA

Harpriya Khela Square

Harpriya
Khela

Toronto, Canada

Hephzibah Adegoke Square

Hephzibah
Adegoke

Edinburgh, Scotland

Sandy Zeng

Sandy
Zeng

Pennsylvania, USA

Basim Munir

Basim
Munir

Lahore, Pakistan

Chelsea Dong

Chelsea
Dong

California, USA

Relations Board

Nadia Ouhaj Square

Nadia
Ouhaj

New York, USA

Yahaya bin Basiron

Yahaya bin
Basiron

Bandar Baru Nilai, Malaysia

Namira Mehedi Square

Namira
Mehedi

New York, USA