Florida (United States)
Scleroderma Stories Issue 1
When were you diagnosed?
I got diagnosed in 2002, but I feel that I have had scleroderma my whole life. At the time, my kids were five and nine years old (now, they are 23 and 27). I was living in Las Vegas as a single mom.
My hands were swelling up, and my joints were hurting. Once diagnosed, I got sick hard and fast. I had gangrene on both hands and almost lost four fingers. The doctors had me on a lot of medicine.
I thought, that’s how my life was going to be, and then I’ll die. I had depression and anxiety – a breakdown.
How has your outlook changed since then?
Could you please describe that life-changing moment and how it motivated you?
How has scleroderma’s effects on your appearance affected you and your confidence with modeling?
What kinds of doctors have you seen, and what medical workups and treatments have you had?
What advice do you have for those with scleroderma or other chronic illnesses?
Be sure to follow us on Instagram and Facebook (@sclerounited) to see more scleroderma warriors’ journeys in our weekly Sclero Sunday series.
Are you a scleroderma warrior? We’d love to interview you for Scleroderma Stories! Please visit tinyurl.com/share-my-sclero-story or email us at email@example.com