Toronto, Ontario (Canada)
Scleroderma Stories Issue 1
Could you please tell us about your journey?
I’m 36 years old. I was diagnosed with systemic scleroderma 12 years ago, shortly after my first child. At the time, I was 24 years old. It started with severe Raynaud’s syndrome. At first, I thought it was lupus. My doctor refused to test me. However, I insisted. My antinuclear antibody (ANA) test came back positive, and further testing showed systemic scleroderma. I had not heard of scleroderma before my diagnosis. Lupus, yes, but not scleroderma.
I now have 3 children. My Raynaud’s and gastrointestinal issues have been been the biggest struggle. I’m a free spirit, no bullshit kinda girl. It took years for me to change my narrative about this disease. I spent years allowing this disease to own me.
What helped you change your narrative about this disease?
How have you worked on what your purpose is in this life?
What kinds of doctors have you seen, and what medical workups and treatments have you had?
Have you experienced any difficulties with having children while dealing with your disease?
What advice do you have for those with scleroderma or other chronic illnesses?
Be sure to follow us on Instagram and Facebook (@sclerounited) to see more scleroderma warriors’ journeys in our weekly Sclero Sunday series.
Are you a scleroderma warrior? We’d love to interview you for Scleroderma Stories! Please visit tinyurl.com/share-my-sclero-story or email us at email@example.com