Madison, Wisconsin (United States)
Scleroderma Stories Issue 1
Could you please tell us about yourself?
I am originally from Bethlehem, Pennsylvania, which is affectionately known as the “Christmas City”. I moved to Florida in 2013 to pursue a masters in speech pathology at the University of South Florida and now am finishing up my doctorate at the University of Florida.
My passion is research, and I currently study swallowing disorders in people with ALS (or Lou Gehrig’s Disease). I will be moving to Madison, Wisconsin in March after I defend to research swallowing in Alzheimer’s and the frail elderly.
My hobbies include nature walks with my new puppy, Fred, and trying all different types of restaurants with my close friends!
What led to your diagnosis?
How did you feel after being diagnosed?
How has this disease affected you?
Do you experience any difficulties in completing tasks required by your research work?
What kinds of doctors have you seen, and what medical workups and treatments have you had?
What treatments have you found most helpful?
What advice do you have for those with scleroderma or other chronic illnesses?
Be sure to follow us on Instagram and Facebook (@sclerounited) to see more scleroderma warriors’ journeys in our weekly Sclero Sunday series.
Are you a scleroderma warrior? We’d love to interview you for Scleroderma Stories! Please visit tinyurl.com/share-my-sclero-story or email us at email@example.com