New York City, New York (United States)
Scleroderma Stories Issue 1
How has scleroderma affected your life?
I am Juliana, 46 years old, diffuse scleroderma… and giving my all to see more years with my kids, the best way that I can. I am a mom of two fighters: Victor, who is sixteen, and Manuela, who will turn fifteen this coming March. We have been through so much, like many of us with scleroderma.
Within two years, I lost close to everything that I had built materially. We lost our dream home… We lost a marriage of seventeen years… We lost stability as we knew it.
We are still struggling. Hard. Getting sick and abandoned just made our survival that much more profound.
When were you diagnosed?
When your diagnosis changed to systemic sclerosis, how did you feel?
What mindset changes have you made since being diagnosed?
What advice do you have for those with scleroderma or other chronic illnesses?
Be sure to follow us on Instagram and Facebook (@sclerounited) to see more scleroderma warriors’ journeys in our weekly Sclero Sunday series.
Are you a scleroderma warrior? We’d love to interview you for Scleroderma Stories! Please visit tinyurl.com/share-my-sclero-story or email us at email@example.com