Scleroderma Stories Issue 2
Please introduce yourself
My full name is Shirley Alvarez, and I am 29 years old. I’m a regular girl trying to make the most out of life. I was diagnosed very early on with scleroderma at the age of 9. I’ve been trying to cope with that and have a creative life, so it’s been a long journey, but I think I’m doing okay overall while trying to make the best of it.
What are you passionate about?
Do your hobbies help you deal with your scleroderma?
When was your diagnosis, and what symptoms led up to it?
To what extent did you understand what scleroderma actually was at the time?
What symptoms have you developed since diagnosis?
How did these changes affect your ability to interact with your family, friends, school, and job?
Did your friends understand what you were going through?
Is there a certain mindset with which you approach your scleroderma?
Is there anything in specific that gets you through the difficult times?
Do you have any goals or dreams for the future?
What medications have you taken and treatments have you done?
Do you have lot of medical expenses?
Have you made any special adjustments for the coronavirus?
Are you in any social groups or online scleroderma communities?
What advice do you have for people with scleroderma or other chronic illnesses?
Be sure to follow us on Instagram and Facebook (@sclerounited) to see more scleroderma warriors’ journeys in our weekly Sclero Sunday series.
Are you a scleroderma warrior? We’d love to interview you for Scleroderma Stories! Please visit tinyurl.com/share-my-sclero-story or email us at email@example.com