Kansas (United States)
Scleroderma Stories Issue 2
Please tell us a little about yourself
My name is Macy Phillips, and I am 19 years old. I love to write (I actually have a blog), scrapbook, and journal. I live in Kansas with my boyfriend of almost three years, and I have two dogs named Chi Chi and Kane. My family and my partner are important to me.
What led to your scleroderma diagnosis?
How did this change your ability to interact with friends or attend school?
Have you been able to work?
Has your difficulty with working or medical expenses caused any financial hardship for you or your family?
How much medicine do you take, and how often do you go to the doctor’s?
Was there a certain point where you started to actively learn about scleroderma?
Could you please tell us a little more about your blog?
What is the hardest part of living with scleroderma?
Have you ever met any other children with scleroderma?
What are your goals or dreams for the future?
Have you had to make any special adjustments due to the coronavirus?
What advice do you have for those with scleroderma or other chronic illnesses?
Be sure to follow us on Instagram and Facebook (@sclerounited) to see more scleroderma warriors’ journeys in our weekly Sclero Sunday series.
Are you a scleroderma warrior? We’d love to interview you for Scleroderma Stories! Please visit tinyurl.com/share-my-sclero-story or email us at firstname.lastname@example.org