Fredericksburg, Texas (United States)
Scleroderma Stories Issue 2
Shannon is the founder of Camp Diasozo
Shannon founded Camp Diasozo, a unique camp working to enrich the lives of children with morphea and scleroderma and their families by offering a retreat-like environment for them to enjoy.
Camp Diasozo is located in the county of Fredericksburg, Texas. The camp gives the children a place where they can make new friends that they can learn from and share with, a place for their families and others who struggle with the same health and social issues, and most of all – a place where they belong.
Could you please tell us about yourself?
What led to your scleroderma diagnosis?
When did you first meet someone else with scleroderma?
When and how did you come up with the idea for Camp Diasozo?
Do you have any advice for other children/young adults with scleroderma?
Be sure to follow us on Instagram and Facebook (@sclerounited) to see more scleroderma warriors’ journeys in our weekly Sclero Sunday series.
Are you a scleroderma warrior? We’d love to interview you for Scleroderma Stories! Please visit tinyurl.com/share-my-sclero-story or email us at firstname.lastname@example.org