Harlem, New York (United States)
Scleroderma Stories Issue 2
Please introduce yourself
I am from Harlem, New York, but I currently live in Long Island, New York. I like to listen to music, sing (although I don’t sound so good) but I would say it helps me to feel good. I love working out, & just hanging out with my loved ones. I have a French bulldog named Mazi.
The most important factors of my life are God, my child Kaelon, and my husband/child’s father, Sayquan. God has helped me get through so much in life & I know for sure he’s always with me. My child, my miracle, my king, Kaelon, has taught me to continue the fight. Though I have painful days, I never let him see me down, so he can grow up to know NOTHING CAN KNOCK him from what he wants in life. Sayquan has been by my side since high school, always reminded me we are in this fight as ONE, and never left me alone or made me feel alone. My family is EVERYTHING to me!
I can’t forget my scleroderma sisters/brothers that I have been connecting with on social media. I am thankful and grateful for them all.
Could you please describe what led to your diagnosis?
What was the experience of growing up as a young child with scleroderma like?
Keanna’s hands now
Did having scleroderma affect your ability to attend and participate at school?
What effect do you think scleroderma has had on your goals and mindset?
When you were pregnant with your son, were there any difficulties because of your scleroderma? Are there any difficulties now?
Have scleroderma’s effects on your physical appearance influenced your confidence or view of yourself?
As someone with scleroderma, have you had to make any special adjustments due to the coronavirus?
What do you think is the hardest part about living with scleroderma?
Do you have any advice for those living with scleroderma or other chronic illnesses?
Be sure to follow us on Instagram and Facebook (@sclerounited) to see more scleroderma warriors’ journeys in our weekly Sclero Sunday series.
Are you a scleroderma warrior? We’d love to interview you for Scleroderma Stories! Please visit tinyurl.com/share-my-sclero-story or email us at email@example.com