Long Island, New York (United States)
Scleroderma Stories Issue 2
Please introduce yourself
My name is Jayda, and I’m a 19-year-old girl from Long Island, NY! My dog, Mocha, means the absolute world to me, as well as my mom, Jennifer, my sister, Selin, and my boyfriend, Jacob.
I used to row back in high school, but when my symptoms got in the way, I put my energy into the gym! I really like fitness and nutrition as a whole. Health and wellness is number one for me, which is why I want to become a nurse practitioner in psychiatry when I graduate. I kayak, fish, paddle board… anything in the gym or on the water is for me! I also have an Etsy shop where I make soaps, candles, sprays, etc!
How have you had to make adjustments to how you do these things to accommodate for your scleroderma?
When were you diagnosed, and what symptoms led to your diagnosis?
Was there a certain point at which you started actively learning more about scleroderma?
What is the hardest symptom for you to deal with?
Have you developed any other symptoms since your diagnosis?
What is the most difficult part of living with scleroderma?
Has scleroderma affected your ability to attend school or work? Did you have any teachers or friends that understood your scleroderma?
Could you elaborate on how they’ve helped you through this pandemic? Or talk about any adjustments you’ve had to make because of COVID?
Did you miss any particularly memorable moments or events because of your scleroderma?
Could you speak on the medications or treatments that you’ve done for your scleroderma?
What advice do you have for those with scleroderma or other chronic illnesses?
Be sure to follow us on Instagram and Facebook (@sclerounited) to see more scleroderma warriors’ journeys in our weekly Sclero Sunday series.
Are you a scleroderma warrior? We’d love to interview you for Scleroderma Stories! Please visit tinyurl.com/share-my-sclero-story or email us at firstname.lastname@example.org