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SCLERODERMA UNITED’S BOARD

Founder and President

Cosette Wu

Founder and President

Hi! My name is Cosette. I founded Scleroderma United back in 2019 after my grandpa passed away from systemic sclerosis. I’m originally from Honolulu, Hawaii but am currently in Cambridge, Massachusetts pursuing my undergraduate degree at Harvard University. Scleroderma United’s mission of connecting and empowering scleroderma warriors around the world arose from my experience witnessing the disease’s impact on my grandpa, and I’m so grateful to have met countless wonderful and inspiring people through our organization’s work! Outside of leading Scleroderma United, I serve as Co-President of the Harvard Undergraduate Foreign Policy Initiative, Vice President of the Harvard Venture Capital Group, and Co-Captain of the Harvard Club Tennis Team. I’m working in London this summer at the National Academy for Social Prescribing, and I’m excited to bring what I learn back to Scleroderma United and improve our initiatives!

Hi! My name is Cosette. I founded Scleroderma United back in 2019 after my grandpa passed away from systemic sclerosis. I’m originally from Honolulu, Hawaii but am currently in Cambridge, Massachusetts pursuing my undergraduate degree at Harvard University. Scleroderma United’s mission of connecting and empowering scleroderma warriors around the world arose from my experience witnessing the disease’s impact on my grandpa, and I’m so grateful to have met countless wonderful and inspiring people through our organization’s work! Outside of leading Scleroderma United, I serve as Co-President of the Harvard Undergraduate Foreign Policy Initiative, Vice President of the Harvard Venture Capital Group, and Co-Captain of the Harvard Club Tennis Team. I’m working in London this summer at the National Academy for Social Prescribing, and I’m excited to bring what I learn back to Scleroderma United and improve our initiatives!

Vice President

Khushboo Shukla

Vice President

Hello, everyone! I’m Khushboo Shukla, the Vice President of Scleroderma United from Houston, TX. Having personally experienced the impact of Raynaud’s and other Scleroderma-related symptoms through my loved ones, I’m passionate about raising awareness and providing resources for this rare disease. My focus is on creating a supportive network for all Scleroderma Warriors, allowing us to connect, share experiences, and exchange valuable tips within our community. Additionally, I’m interested in collaborating with rural, minority, and underserved communities to better understand their specific challenges and provide necessary resources to address social determinants of health that affect their well-being. Outside of my work, I also enjoy traveling to new places and exploring local cafes, restaurants, and shops. Together, let’s make a positive impact and journey forward with purpose and enthusiasm!

Hello, everyone! I’m Khushboo Shukla, the Vice President of Scleroderma United from Houston, TX. Having personally experienced the impact of Raynaud’s and other Scleroderma-related symptoms through my loved ones, I’m passionate about raising awareness and providing resources for this rare disease. My focus is on creating a supportive network for all Scleroderma Warriors, allowing us to connect, share experiences, and exchange valuable tips within our community. Additionally, I’m interested in collaborating with rural, minority, and underserved communities to better understand their specific challenges and provide necessary resources to address social determinants of health that affect their well-being. Outside of my work, I also enjoy traveling to new places and exploring local cafes, restaurants, and shops. Together, let’s make a positive impact and journey forward with purpose and enthusiasm!

Executive Director of Scleroderma Stories

Eshika Kudaravalli

Executive Director of Scleroderma Stories

My name is Eshika Kudaravalli, and I am from Hoover, Alabama. Majoring in neuroscience on the pre-med track, I am beyond thrilled to be a part of Scleroderma United’s team, where I can utilize my passion for medicine and patient advocacy to continue this team’s meaningful mission of connecting Scleroderma warriors, so they can approach their medical journey with increased confidence and resilience. Along with being an executive director of Scleroderma United, I love to spend my time gardening, baking eggless pastries, participating in cutting-edge research, and volunteering in hospitals.

My name is Eshika Kudaravalli, and I am from Hoover, Alabama. Majoring in neuroscience on the pre-med track, I am beyond thrilled to be a part of Scleroderma United’s team, where I can utilize my passion for medicine and patient advocacy to continue this team’s meaningful mission of connecting Scleroderma warriors, so they can approach their medical journey with increased confidence and resilience. Along with being an executive director of Scleroderma United, I love to spend my time gardening, baking eggless pastries, participating in cutting-edge research, and volunteering in hospitals.

Director of Interviews

Helmi Hietanen

Director of Interviews

Hi, I’m Helmi! I’m originally from Finland but live in Scotland, UK. I’m studying biological sciences with an immunology specialization at the University of Edinburgh. I joined Scleroderma United because I’m very interested in human health and want to contribute to Scleroderma United’s mission of supporting, empowering and connecting patients with this rare disease. I’m really excited to be part of this organization and continue the rewarding work! Outside of Scleroderma United and my studies, I love learning languages (currently Spanish), admiring art, doing yoga and dancing bachata.

Hi, I’m Helmi! I’m originally from Finland but live in Scotland, UK. I’m studying biological sciences with an immunology specialization at the University of Edinburgh. I joined Scleroderma United because I’m very interested in human health and want to contribute to Scleroderma United’s mission of supporting, empowering and connecting patients with this rare disease. I’m really excited to be part of this organization and continue the rewarding work! Outside of Scleroderma United and my studies, I love learning languages (currently Spanish), admiring art, doing yoga and dancing bachata.

Director of Editing

Aditya Sil

Director of Editing

Hi, I’m Aditya! I’m from India, but have spent most of my life living in Singapore and China, and am currently an undergraduate student currently studying Medical Biosciences at Imperial College London. Having a keen interest in biomedicine, I was initially interested in scleroderma from a scientific viewpoint. Through my research, it became evident to me that there is a severe lack of awareness about scleroderma among the general public, which is what led me to discover Scleroderma United. Apart from my interest in the biosciences, I am a hardcore Taylor Swift fan and I’m obsessed with romanticising my life as an international student in London! I hope to bring a unique perspective to the Scleroderma United team and work to empower those affected by this disease.

Hi, I’m Aditya! I’m from India, but have spent most of my life living in Singapore and China, and am currently an undergraduate student currently studying Medical Biosciences at Imperial College London. Having a keen interest in biomedicine, I was initially interested in scleroderma from a scientific viewpoint. Through my research, it became evident to me that there is a severe lack of awareness about scleroderma among the general public, which is what led me to discover Scleroderma United. Apart from my interest in the biosciences, I am a hardcore Taylor Swift fan and I’m obsessed with romanticising my life as an international student in London! I hope to bring a unique perspective to the Scleroderma United team and work to empower those affected by this disease.

Director of Design

Matthew Nguyen

Director of Design

Hi, I’m Matthew. I’m an undergraduate student at Monash University, studying a Bachelor of Science and Arts. I joined Scleroderma United in hopes of learning more about this rare disease and spreading awareness of it, as well as to meet new people and gain valuable experiences. Outside of volunteering with Scleroderma United, I enjoy playing my instruments, learning new languages, and playing video games with friends!

Hi, I’m Matthew. I’m an undergraduate student at Monash University, studying a Bachelor of Science and Arts. I joined Scleroderma United in hopes of learning more about this rare disease and spreading awareness of it, as well as to meet new people and gain valuable experiences. Outside of volunteering with Scleroderma United, I enjoy playing my instruments, learning new languages, and playing video games with friends!

Director of Diversity

Shreya Goel

Director of Diversity

Hello! My name is Shreya Goel, and I am from Charlotte, North Carolina! I am an undergraduate at Duke University studying chemistry and biology on the premed track. I joined Scleroderma United to play a part in bringing increased awareness and highlighting patient stories surrounding underrepresented diseases like scleroderma. I aspire to convey the raw emotion contained within a unique range of patient experiences to those seeking companionship and a sense of belonging through their journey. Outside of volunteering with Scleroderma United, I love to dance, spend time in nature, and explore Durham’s vibrant food scene!

Hello! My name is Shreya Goel, and I am from Charlotte, North Carolina! I am an undergraduate at Duke University studying chemistry and biology on the premed track. I joined Scleroderma United to play a part in bringing increased awareness and highlighting patient stories surrounding underrepresented diseases like scleroderma. I aspire to convey the raw emotion contained within a unique range of patient experiences to those seeking companionship and a sense of belonging through their journey. Outside of volunteering with Scleroderma United, I love to dance, spend time in nature, and explore Durham’s vibrant food scene!

Executive Director of Education Programs

Atharv Padmalayam

Executive Director of Education Programs

Hi! My name is Atharv Prajod. I was raised in Singapore and am currently in Madison, Wisconsin! I am passionate about economic development and hope to work toward alleviating poverty in developing countries in the future. I am an also an aspiring writer and love to cram a run in every morning 🙂

Hi! My name is Atharv Prajod. I was raised in Singapore and am currently in Madison, Wisconsin! I am passionate about economic development and hope to work toward alleviating poverty in developing countries in the future. I am an also an aspiring writer and love to cram a run in every morning 🙂

Director of Children & Young People Programs

Grace Doyle

Director of Children & Young People Programs

I am so excited to contribute to the mission and impact of Scleroderma United! My name is Grace, and I am a Postbaccalaureate Premedical Student pursuing a career in Pediatric Medicine. My family and I have a rescue dog from Mississippi and outside of work, love to cook and play sports together.

I am so excited to contribute to the mission and impact of Scleroderma United! My name is Grace, and I am a Postbaccalaureate Premedical Student pursuing a career in Pediatric Medicine. My family and I have a rescue dog from Mississippi and outside of work, love to cook and play sports together.

Director of Accessibility Resource Programs

Ruhana Shewtee

Director of Accessibility Resource Programs

Hello, I am Ruhana. I am a first-year medical student at Imperial College London. I joined Scleroderma United because I am excited to raise awareness about scleroderma and help create a “united” scleroderma community!

Hello, I am Ruhana. I am a first-year medical student at Imperial College London. I joined Scleroderma United because I am excited to raise awareness about scleroderma and help create a “united” scleroderma community!

Interview Board Member

Tasmia Rahman

Interview Board Member

I am an undergraduate medical student from India. I joined Scleroderma United’s team because I wanted to have an impactful role in this society, and even if I get to do the littlest of things just to try and help the community, I’ll do my best! Besides volunteering with Scleroderma United, I try on many other different platforms to acknowledge peoples problems with certain rare diseases, and I try to gain knowledge from anywhere and everywhere. I play badminton and try to acknowledge myself with new things in day to day life.

I am an undergraduate medical student from India. I joined Scleroderma United’s team because I wanted to have an impactful role in this society, and even if I get to do the littlest of things just to try and help the community, I’ll do my best! Besides volunteering with Scleroderma United, I try on many other different platforms to acknowledge peoples problems with certain rare diseases, and I try to gain knowledge from anywhere and everywhere. I play badminton and try to acknowledge myself with new things in day to day life.

Interview Board Member

Dev Kumar Sharma

Interview Board Member

I am from Delhi, India but am studying in Belarus as a second-year medical undergraduate. I joined Scleroderma United’s team because I like to see how different communities work together to help a certain cause and just to communicate with many different people. I enjoy learning about their lives and learning from what they go through because of this disease, and I want to help people by spreading awareness about disease and contribute even the littlest in making a change to the community. My hobbies are to play badminton, cricket, and other sports. I’d love to contribute my part in this society.

I am from Delhi, India but am studying in Belarus as a second-year medical undergraduate. I joined Scleroderma United’s team because I like to see how different communities work together to help a certain cause and just to communicate with many different people. I enjoy learning about their lives and learning from what they go through because of this disease, and I want to help people by spreading awareness about disease and contribute even the littlest in making a change to the community. My hobbies are to play badminton, cricket, and other sports. I’d love to contribute my part in this society.

Interview Board Member

Alexander Adams

Interview Board Member

I am from Savannah, GA, and I attend Duke University, studying biology and chemistry on the Pre-Health track. I joined the Scleroderma United team to make a tangible contribution to towards the efforts against the disease, and to build a community among affected patients. Outside of my volunteer work: I am apart of Duke University’s Army ROTC program, where I undergo training to commission as an officer upon graduation. A few of my hobbies include fishing, running, sewing, lifting weights, and glass blowing.

I am from Savannah, GA, and I attend Duke University, studying biology and chemistry on the Pre-Health track. I joined the Scleroderma United team to make a tangible contribution to towards the efforts against the disease, and to build a community among affected patients. Outside of my volunteer work: I am apart of Duke University’s Army ROTC program, where I undergo training to commission as an officer upon graduation. A few of my hobbies include fishing, running, sewing, lifting weights, and glass blowing.

Interview Board Member

Homa Aminzadeh Ghavifekr

Interview Board Member

I’m a medical student from Iran. I’ve always been passionate about helping others in general, and I’d like to be of use to those who have unique challenges. I knew from my lectures and textbooks about the nature of scleroderma, and I noticed the daily challenges of people with this condition are rarely a topic for discussion. I was quite inspired by Scleroderma United’s work, and their efforts at sharing people’s stories. Therefore, I decided to be a part of this team. Despite having a tough schedule, I make sure to listen to music, podcasts and to draw when I can.

I’m a medical student from Iran. I’ve always been passionate about helping others in general, and I’d like to be of use to those who have unique challenges. I knew from my lectures and textbooks about the nature of scleroderma, and I noticed the daily challenges of people with this condition are rarely a topic for discussion. I was quite inspired by Scleroderma United’s work, and their efforts at sharing people’s stories. Therefore, I decided to be a part of this team. Despite having a tough schedule, I make sure to listen to music, podcasts and to draw when I can.

Interview Board Member

Richard Ren

Interview Board Member

Hey all! My name is Richard Ren and I am from NYC. I am currently a freshman at Columbia University double majoring in computer science and biology. I wanted to join Scleroderma United because recently I got into journalism. Having been fascinated in medicine for quite a bit, I learned how journalism can be used to share important medical research and breakthroughs with the public, raising awareness and potentially even influencing public policy. With my interest in biology and computer science, I believe I can use data-driven journalism to analyze and report on scientific findings in a way that is both informative and accessible to a wider audience. Joining Scleroderma United provides me with an opportunity to combine my passion for journalism with my desire to make a positive impact on the world, by raising awareness about and helping those with scleroderma. Outside of Scleroderma United, I enjoy playing badminton, coding, and exploring local eateries!

Hey all! My name is Richard Ren and I am from NYC. I am currently a freshman at Columbia University double majoring in computer science and biology. I wanted to join Scleroderma United because recently I got into journalism. Having been fascinated in medicine for quite a bit, I learned how journalism can be used to share important medical research and breakthroughs with the public, raising awareness and potentially even influencing public policy. With my interest in biology and computer science, I believe I can use data-driven journalism to analyze and report on scientific findings in a way that is both informative and accessible to a wider audience. Joining Scleroderma United provides me with an opportunity to combine my passion for journalism with my desire to make a positive impact on the world, by raising awareness about and helping those with scleroderma. Outside of Scleroderma United, I enjoy playing badminton, coding, and exploring local eateries!

Interview Board Member

Maria Komissovskaya

Interview Board Member

My name is Maria Komissovskaya and I am originally from Moscow, Russia but I have lived in Atlanta, GA since I was 9. I will be graduating from the Georgia Institute of Technology in May with a degree in Public Policy on the Pre-Medical track. I joined the Scleroderma United team because I love the aspect of empowering individuals with a rare disease, and I am especially excited to talk to them directly in order to understand more about their daily life. People can often feel socially isolated, and this type of organization helps people feel confident that they can live an amazing life, regardless of their diagnosis. Outside of Scleroderma United, I am a part of Student Hospital Connections and Healthy Jacket Peer Educators at GT, and I shadow a physician at CHOA. I will also be starting a job at a Dermatology practice after graduation. Some of my hobbies/things I enjoy include working out, watching Formula One racing, going to concerts, cooking, looking for new music, and trying out new places with friends!

My name is Maria Komissovskaya and I am originally from Moscow, Russia but I have lived in Atlanta, GA since I was 9. I will be graduating from the Georgia Institute of Technology in May with a degree in Public Policy on the Pre-Medical track. I joined the Scleroderma United team because I love the aspect of empowering individuals with a rare disease, and I am especially excited to talk to them directly in order to understand more about their daily life. People can often feel socially isolated, and this type of organization helps people feel confident that they can live an amazing life, regardless of their diagnosis. Outside of Scleroderma United, I am a part of Student Hospital Connections and Healthy Jacket Peer Educators at GT, and I shadow a physician at CHOA. I will also be starting a job at a Dermatology practice after graduation. Some of my hobbies/things I enjoy include working out, watching Formula One racing, going to concerts, cooking, looking for new music, and trying out new places with friends!

Interview Board Member

Sanjana Anand

Interview Board Member

My name is Sanjana, and I’m a first-year student at Duke University studying biology, chemistry, and global health. I’m originally from California, so I love the warm weather and spending time outside! I think Scleroderma United spreads awareness of an extremely important aspect of healthcare and disease management that often gets overlooked, so I’m very excited to be a part of this team and help make a difference. I also enjoy playing tennis, listening to music, and reading romance novels.

My name is Sanjana, and I’m a first-year student at Duke University studying biology, chemistry, and global health. I’m originally from California, so I love the warm weather and spending time outside! I think Scleroderma United spreads awareness of an extremely important aspect of healthcare and disease management that often gets overlooked, so I’m very excited to be a part of this team and help make a difference. I also enjoy playing tennis, listening to music, and reading romance novels.

Interview Board Member

Shourya Kashyap

Interview Board Member

My name is Shourya Kashyap, and I am a second year medical student at the Texas A&M School of Medicine. I am from Houston and graduated from the University of Houston with a degree in Biomedical Engineering and a Minor in Spanish as a part of the Class of 2021. Growing up in Houston, I enjoyed playing all kinds of sports and tasting different types of food in the diverse cultural scene the city has. Additionally, I enjoy going to different coffee shops and reading books. I joined Scleroderma United to talk with patients and their affected family members to get a better understanding of their experiences and needs with a diagnosis. I hope to use that to become a better physician for my patients in the future.

My name is Shourya Kashyap, and I am a second year medical student at the Texas A&M School of Medicine. I am from Houston and graduated from the University of Houston with a degree in Biomedical Engineering and a Minor in Spanish as a part of the Class of 2021. Growing up in Houston, I enjoyed playing all kinds of sports and tasting different types of food in the diverse cultural scene the city has. Additionally, I enjoy going to different coffee shops and reading books. I joined Scleroderma United to talk with patients and their affected family members to get a better understanding of their experiences and needs with a diagnosis. I hope to use that to become a better physician for my patients in the future.

Interview Board Member

Casen Whitehead

Interview Board Member

Hi everyone! My name is Casen Whitehead, and I am a student at UNC-Chapel Hill in North Carolina. I am from Holly Springs, North Carolina, and I am studying Environmental Health Sciences and Psychology on the Pre-Med track. My future career goal is to pursue medical school in the hopes of becoming an anesthesiologist. My hobbies include running, hanging out with friends, reading, watching reality TV, and seeking anything that boosts my adrenaline. I have always been an “adventure seeker,” so I love traveling, being adventurous, experiencing new cultures, and trying new things. I joined Scleroderma United’s team because I have a true passion for helping people who are facing tough medical obstacles. As someone who was diagnosed with Leukemia in high school, I know what it means to face a life-changing event and to feel lost; as a result, I want to use my own experiences—as well as the stories I learn from others—to not only encourage patients with Scleroderma to keep fighting but to also educate and spread advocacy about this rare autoimmune disease.

Hi everyone! My name is Casen Whitehead, and I am a student at UNC-Chapel Hill in North Carolina. I am from Holly Springs, North Carolina, and I am studying Environmental Health Sciences and Psychology on the Pre-Med track. My future career goal is to pursue medical school in the hopes of becoming an anesthesiologist. My hobbies include running, hanging out with friends, reading, watching reality TV, and seeking anything that boosts my adrenaline. I have always been an “adventure seeker,” so I love traveling, being adventurous, experiencing new cultures, and trying new things. I joined Scleroderma United’s team because I have a true passion for helping people who are facing tough medical obstacles. As someone who was diagnosed with Leukemia in high school, I know what it means to face a life-changing event and to feel lost; as a result, I want to use my own experiences—as well as the stories I learn from others—to not only encourage patients with Scleroderma to keep fighting but to also educate and spread advocacy about this rare autoimmune disease.

Interview Board Member

Anoohya Panidapu

Interview Board Member

Hi, I’m Anoohya and I’m from San Jose, CA! I graduated from UC Berkeley with a degree in Chemistry and minors in bioengineering and global public health in December 2022. I joined Scleroderma United’s team because I want to support and empower patients as they navigate living with scleroderma and help increase awareness for the disease. Some of my hobbies include baking (lots of cookies), cooking, hiking, watching comedy-crime shows, and listening to lots of Taylor Swift. I hope to pursue a career in healthcare, and am specifically interested in oncology and immunology.

Hi, I’m Anoohya and I’m from San Jose, CA! I graduated from UC Berkeley with a degree in Chemistry and minors in bioengineering and global public health in December 2022. I joined Scleroderma United’s team because I want to support and empower patients as they navigate living with scleroderma and help increase awareness for the disease. Some of my hobbies include baking (lots of cookies), cooking, hiking, watching comedy-crime shows, and listening to lots of Taylor Swift. I hope to pursue a career in healthcare, and am specifically interested in oncology and immunology.

Interview Board Member

Hitesh Suthar

Interview Board Member

My name is Hitesh, and I am an Medical graduate from India. I have completed my M.D. in the Philippines and have a diploma in Psychology as well as an M.B.A. in clinical research and hospital management. I want to help people with scleroderma in any way I can!

My name is Hitesh, and I am an Medical graduate from India. I have completed my M.D. in the Philippines and have a diploma in Psychology as well as an M.B.A. in clinical research and hospital management. I want to help people with scleroderma in any way I can!

Editing Board Member

Taibia Rahman

Editing Board Member

I am from India, although I spent all my life in Dubai. I am a 4th year medical student in Georgia. I want to be a part of this amazing opportunity that helps patients achieve quality of life. Scleroderma United provides a rare opportunity to change and improve the lives of so many people. Being a medical student, I don’t have time to do much besides clinical rotations and studying!

I am from India, although I spent all my life in Dubai. I am a 4th year medical student in Georgia. I want to be a part of this amazing opportunity that helps patients achieve quality of life. Scleroderma United provides a rare opportunity to change and improve the lives of so many people. Being a medical student, I don’t have time to do much besides clinical rotations and studying!

Editing Board Member

Ryan Rajeev

Editing Board Member

Hi, I’m from India. I currently study at David Tvildiani Medical University in Tbilisi, Georgia. I’m in my 4th year now, so evidently that leaves little room for most other hobbies. I decided to join the Scleroderma United team in order to contribute to a great cause that I am personally invested in owing to my field and future career path. I hope I’ll be able to do my part in helping the team reach as many people as possible.

Hi, I’m from India. I currently study at David Tvildiani Medical University in Tbilisi, Georgia. I’m in my 4th year now, so evidently that leaves little room for most other hobbies. I decided to join the Scleroderma United team in order to contribute to a great cause that I am personally invested in owing to my field and future career path. I hope I’ll be able to do my part in helping the team reach as many people as possible.

Editing Board Member

Gayatri Dhir

Editing Board Member

Hi everyone! My name is Gayatri. I’m a high school sophomore (almost junior) in Singapore and a member of the Editing Board. I’m passionate about advocacy, writing, and medicine – which is exactly why I was interested in Scleroderma United. In my free time, I love to read novels, obsessively update my Goodreads profile, and watch Formula One. I also love to play the piano and crochet gifts for my friends. I’m excited to be part of this organization!

Hi everyone! My name is Gayatri. I’m a high school sophomore (almost junior) in Singapore and a member of the Editing Board. I’m passionate about advocacy, writing, and medicine – which is exactly why I was interested in Scleroderma United. In my free time, I love to read novels, obsessively update my Goodreads profile, and watch Formula One. I also love to play the piano and crochet gifts for my friends. I’m excited to be part of this organization!

Editing Board Member

Talya Jeter

Editing Board Member

I attend school at Duke University in Durham, NC, but I am originally from Cleveland, OH. In the fall, I will be starting my master’s in biomedical engineering. Outside of engineering, I enjoy editing college essay applications and also, I guess still engineering-related, work on the DukEngineer magazine. I joined Scleroderma United to help empower patients by sharing their stories in written form. Outside of volunteering for Scleroderma United, some of my hobbies include playing video games and tutoring young students in STEM.

I attend school at Duke University in Durham, NC, but I am originally from Cleveland, OH. In the fall, I will be starting my master’s in biomedical engineering. Outside of engineering, I enjoy editing college essay applications and also, I guess still engineering-related, work on the DukEngineer magazine. I joined Scleroderma United to help empower patients by sharing their stories in written form. Outside of volunteering for Scleroderma United, some of my hobbies include playing video games and tutoring young students in STEM.

Editing Board Member

Janice Wong

Editing Board Member

Hi, I’m Janice from Hong Kong, currently doing an Mpharm degree at University College London. As a pharmacy student, other than helping patients in hospitals and pharmacies, I hope to do more for patients outside of clinical settings such that patients are able to thrive and cope with their conditions better. As part of the Editing Board of Scleroderma United, I would like to help create a safe space and community for scleroderma patients to share their struggles and experiences of dealing with the disease! Outside of volunteering, I love playing the piano and guitar, I’m also always on the look out for good food and sweet treats 🙂

Hi, I’m Janice from Hong Kong, currently doing an Mpharm degree at University College London. As a pharmacy student, other than helping patients in hospitals and pharmacies, I hope to do more for patients outside of clinical settings such that patients are able to thrive and cope with their conditions better. As part of the Editing Board of Scleroderma United, I would like to help create a safe space and community for scleroderma patients to share their struggles and experiences of dealing with the disease! Outside of volunteering, I love playing the piano and guitar, I’m also always on the look out for good food and sweet treats 🙂

Editing Board Member

Jayani Srinivasan

Editing Board Member

Hello! I am a junior in high school from the Los Angeles area. I like scribbling in journals, and I play chess routinely (despite not being very good). My main areas of interest in the medical field include neuroscience, dermatology, and prosthetics. I’m currently working on a project that examines the effects of stress on hippocampal-based memory and constructing a bionic hand for fun! It’s nice to meet you.

Hello! I am a junior in high school from the Los Angeles area. I like scribbling in journals, and I play chess routinely (despite not being very good). My main areas of interest in the medical field include neuroscience, dermatology, and prosthetics. I’m currently working on a project that examines the effects of stress on hippocampal-based memory and constructing a bionic hand for fun! It’s nice to meet you.

Editing Board Member

Kalyan Sankar

Editing Board Member

Hey there! I’m Kalyan Sankar, studying Microbial Biology + Data Sci at UC Berkeley. I joined Scleroderma United to help bring awareness to rare diseases and give patients the information and support they need to persevere mentally and physically. In my free time I like to write, bike, weightlift and play games, and I love learning about all things science!

Hey there! I’m Kalyan Sankar, studying Microbial Biology + Data Sci at UC Berkeley. I joined Scleroderma United to help bring awareness to rare diseases and give patients the information and support they need to persevere mentally and physically. In my free time I like to write, bike, weightlift and play games, and I love learning about all things science!

Design Board Member

Mikayla Machado

Design Board Member

Hi, I’m Mikayla! I am originally from Winnipeg, Manitoba where I earned a Bachelor of Science degree and I am now attending medical school at the University of Toronto. In my spare time, I love to watch movies and I enjoy trying new recipes! I am so excited to contribute to the Scleroderma United Design team and serve the community.

Hi, I’m Mikayla! I am originally from Winnipeg, Manitoba where I earned a Bachelor of Science degree and I am now attending medical school at the University of Toronto. In my spare time, I love to watch movies and I enjoy trying new recipes! I am so excited to contribute to the Scleroderma United Design team and serve the community.

Design Board Member

Jenny She

Design Board Member

Hello! My name is Jenny She, and I am a rising senior at Rice University, studying Health Sciences. I am originally from Bloomfield Hills, MI. I joined Scleroderma United’s team because I want to help share scleroderma warriors’ perspectives with the world through utilizing my skills in design/visual arts. In my free time, I love to watch thriller and horror movies and listen to music (my favorite artists are Pink Sweat$, Valley, and Jeremy Zucker)!

Hello! My name is Jenny She, and I am a rising senior at Rice University, studying Health Sciences. I am originally from Bloomfield Hills, MI. I joined Scleroderma United’s team because I want to help share scleroderma warriors’ perspectives with the world through utilizing my skills in design/visual arts. In my free time, I love to watch thriller and horror movies and listen to music (my favorite artists are Pink Sweat$, Valley, and Jeremy Zucker)!

Design Board Member

Ioana Murgulet

Design Board Member

I am currently an undergraduate at Rice University in Houston, Texas. Originally, I am from Corpus Christi, Texas. At Rice, I am studying Biochemistry and Medical Humanities on the pre-medical track. Right now, I am conducting research on possible chemotherapy agents for rare neuroendocrine tumors at UTHealth. I have also been volunteering at Houston Methodist Hospital for about a year now. I am excited to be apart of Scleroderma United to continue my work on rare diseases and contribute to the expansion of educational resources and research participation, and reduction of misinformation on scleroderma!

I am currently an undergraduate at Rice University in Houston, Texas. Originally, I am from Corpus Christi, Texas. At Rice, I am studying Biochemistry and Medical Humanities on the pre-medical track. Right now, I am conducting research on possible chemotherapy agents for rare neuroendocrine tumors at UTHealth. I have also been volunteering at Houston Methodist Hospital for about a year now. I am excited to be apart of Scleroderma United to continue my work on rare diseases and contribute to the expansion of educational resources and research participation, and reduction of misinformation on scleroderma!

Education Board Member

Caden Lombard

Education Board Member

My name is Caden Lombard, and I am a freshman at Duke University studying biology. I was born in Florida but lived in Guam and Hawai’i for most of my life. I like to spend a lot of time outside whether it be going for a hike or just laying in a field. If I’m not in nature, there’s a good chance I am working in a molecular biology fish lab or watching a movie with friends. I am extremely interested in joining the team at Scleroderma United because I enjoy being a part of a supportive community. I am passionate about helping people and combatting the false idea that chronic diseases have to be debilitating and depressing. I want to listen to and share the stories of people who suffer from scleroderma to remind them that they are not alone. I want to help patients understand their condition and how to live with it to improve quality of life. Raising awareness about rare diseases is essential to improving patient outcomes and mental health. I am so excited to be a part of a team that is committed to supporting patients and creating a community of mutual learning and understanding!

My name is Caden Lombard, and I am a freshman at Duke University studying biology. I was born in Florida but lived in Guam and Hawai’i for most of my life. I like to spend a lot of time outside whether it be going for a hike or just laying in a field. If I’m not in nature, there’s a good chance I am working in a molecular biology fish lab or watching a movie with friends. I am extremely interested in joining the team at Scleroderma United because I enjoy being a part of a supportive community. I am passionate about helping people and combatting the false idea that chronic diseases have to be debilitating and depressing. I want to listen to and share the stories of people who suffer from scleroderma to remind them that they are not alone. I want to help patients understand their condition and how to live with it to improve quality of life. Raising awareness about rare diseases is essential to improving patient outcomes and mental health. I am so excited to be a part of a team that is committed to supporting patients and creating a community of mutual learning and understanding!

Education Board Member

Barbara Afram

Education Board Member

My name is Barbara Afram, and I am a 4th-year psychology student at Burman University in Lacombe, Alberta. I was born in Toronto but am a proud Ghanaian. I’m passionate about spirituality, family, and my future. I currently work as a research assistant in the Selection and Recruitment Lab at the University of Calgary. In my free time, I enjoy reading, travelling, soccer, and weight training. I joined Scleroderma United to raise awareness for the disease, its symptoms, and the patients that have been affected.

My name is Barbara Afram, and I am a 4th-year psychology student at Burman University in Lacombe, Alberta. I was born in Toronto but am a proud Ghanaian. I’m passionate about spirituality, family, and my future. I currently work as a research assistant in the Selection and Recruitment Lab at the University of Calgary. In my free time, I enjoy reading, travelling, soccer, and weight training. I joined Scleroderma United to raise awareness for the disease, its symptoms, and the patients that have been affected.

Education Board Member

Sandhya Sanapala

Education Board Member

My name is Sandhya and I’m from Farmington, Connecticut. I’m currently a second year medical student at the University of Connecticut. Being a student, I’ve had the privilege to spend more time with patients and hear their story compared to my preceptors, who are focused on the administrative tasks, and this has showed me the power of storytelling and its impacts. By joining the team, my goal is to help empower people with rare autoimmune diseases like Scleroderma and hear their needs: whether it be physical, social, emotional, etc. Outside of Scleroderma United, I spend time immersing myself in the gym or in a new fictional world with books! A fun fact about me, I used to play badminton competitively!

My name is Sandhya and I’m from Farmington, Connecticut. I’m currently a second year medical student at the University of Connecticut. Being a student, I’ve had the privilege to spend more time with patients and hear their story compared to my preceptors, who are focused on the administrative tasks, and this has showed me the power of storytelling and its impacts. By joining the team, my goal is to help empower people with rare autoimmune diseases like Scleroderma and hear their needs: whether it be physical, social, emotional, etc. Outside of Scleroderma United, I spend time immersing myself in the gym or in a new fictional world with books! A fun fact about me, I used to play badminton competitively!

Education Board Member

Trisha Natarajan

Education Board Member

I am currently a sophomore at Boston University majoring in biology with a specialization in cell biology, molecular biology, and genetics. I wanted to join Scleroderma United because I was moved by their mission of helping to raise awareness about this chronic disease, as well as giving patients a community to look to for advice. Providing emotional support is just as important as any medical care, and I knew I wanted to be involved with this organization. Outside of Scleroderma United, I work as an on campus EMT, and am on our Bollywood fusion dance team!

I am currently a sophomore at Boston University majoring in biology with a specialization in cell biology, molecular biology, and genetics. I wanted to join Scleroderma United because I was moved by their mission of helping to raise awareness about this chronic disease, as well as giving patients a community to look to for advice. Providing emotional support is just as important as any medical care, and I knew I wanted to be involved with this organization. Outside of Scleroderma United, I work as an on campus EMT, and am on our Bollywood fusion dance team!

Education Board Member

Snigdha Barua

Education Board Member

Hi! My name is Snigdha, a third-year studying Molecular Environmental Biology and Food Systems at UC Berkeley. I was born in Chittagong and immigrated to Long Beach at the age of seven! I joined Scleroderma United because I want to contribute to the mitigation of stigma and help develop culturally sensitive patient-centered approaches to scleroderma by increasing awareness of this often overlooked disease. I am also passionate about the intersection of the environment, human health, public policy, and clinical research. Additionally, I really enjoy cooking, reading, and cafe-hopping! :))

Hi! My name is Snigdha, a third-year studying Molecular Environmental Biology and Food Systems at UC Berkeley. I was born in Chittagong and immigrated to Long Beach at the age of seven! I joined Scleroderma United because I want to contribute to the mitigation of stigma and help develop culturally sensitive patient-centered approaches to scleroderma by increasing awareness of this often overlooked disease. I am also passionate about the intersection of the environment, human health, public policy, and clinical research. Additionally, I really enjoy cooking, reading, and cafe-hopping! :))

Education Board Member

Harpriya Khela

Education Board Member

Hi everyone! My name is Harpriya Khela and I am a Canadian medical student at the Royal College of Surgeons in Ireland. I am super excited to join Scleroderma United’s team as part of the Education Board to continue to spread knowledge on the disease from a patient’s perspective. Every patient has a different story! Outside of volunteering, I have strong Oncology research passions, specifically in Multiple Myeloma. With regards to hobbies, I play on the university’s basketball team and train with the Kickboxing Team! I also enjoy running and picking up new skills such as a third language or baking (although I am not very good).

Hi everyone! My name is Harpriya Khela and I am a Canadian medical student at the Royal College of Surgeons in Ireland. I am super excited to join Scleroderma United’s team as part of the Education Board to continue to spread knowledge on the disease from a patient’s perspective. Every patient has a different story! Outside of volunteering, I have strong Oncology research passions, specifically in Multiple Myeloma. With regards to hobbies, I play on the university’s basketball team and train with the Kickboxing Team! I also enjoy running and picking up new skills such as a third language or baking (although I am not very good).

Education Board Member

Hephzibah Adegoke

Education Board Member

Hi, my name is Hephzibah. I was born in Nigeria and raised in Birmingham, England. I am currently pursuing my studies in Edinburgh. Inspired by the impact of Scleroderma United, I joined the team to help empower people living with scleroderma. When I am not volunteering with Scleroderma United, I enjoy reading – my current favourite genre is psychological thrillers!

Hi, my name is Hephzibah. I was born in Nigeria and raised in Birmingham, England. I am currently pursuing my studies in Edinburgh. Inspired by the impact of Scleroderma United, I joined the team to help empower people living with scleroderma. When I am not volunteering with Scleroderma United, I enjoy reading – my current favourite genre is psychological thrillers!

Education Board Member

Sandy Zeng

Education Board Member

Growing up in Pennsylvania in a hub of hospitals and pharma/biotech companies, I discovered my interest in healthcare early on. During my undergrad years at Columbia, I explored the many different clinical and corporate fields in the healthcare industry, which led me to my current job as a biotech communications strategist. I then decided to join the Scleroderma United team as a volunteer because I missed working with and advocating for patients. I hope to use the communications skills and healthcare experience I have gained to promote Scleroderma United’s mission to educate and provide community for people struggling with Scleroderma.

Growing up in Pennsylvania in a hub of hospitals and pharma/biotech companies, I discovered my interest in healthcare early on. During my undergrad years at Columbia, I explored the many different clinical and corporate fields in the healthcare industry, which led me to my current job as a biotech communications strategist. I then decided to join the Scleroderma United team as a volunteer because I missed working with and advocating for patients. I hope to use the communications skills and healthcare experience I have gained to promote Scleroderma United’s mission to educate and provide community for people struggling with Scleroderma.

Education Board Member

Basim Munir

Education Board Member

My name is Basim. I am an A-level student, on course to completing my final year of high school at SES, UAE. I particularly enjoy playing team sports, having recently constructed my own cricket club with the motto ‘The strength of the team is each member.’ As someone who is passionate about research in disease and immunity, I was immediately drawn to the team’s mission to both: raise awareness about this rare disease and help patients understand that they are not alone. Additionally, the team’s focus on collaboration and inclusivity resonated with me, and I believe that working with like-minded individuals towards a common goal is key to achieving a lasting impact. Ultimately, I am excited about the opportunity to work with such a talented and dedicated group of individuals and to make a meaningful difference in the lives of our Scleroderma warriors.

My name is Basim. I am an A-level student, on course to completing my final year of high school at SES, UAE. I particularly enjoy playing team sports, having recently constructed my own cricket club with the motto ‘The strength of the team is each member.’ As someone who is passionate about research in disease and immunity, I was immediately drawn to the team’s mission to both: raise awareness about this rare disease and help patients understand that they are not alone. Additionally, the team’s focus on collaboration and inclusivity resonated with me, and I believe that working with like-minded individuals towards a common goal is key to achieving a lasting impact. Ultimately, I am excited about the opportunity to work with such a talented and dedicated group of individuals and to make a meaningful difference in the lives of our Scleroderma warriors.

Education Board Member

Chelsea Dong

Education Board Member

My name is Chelsea, and I’m currently a student from California researching under the American College of Cardiology and a Harvard lab. After my aunt passed away from the autoimmune disease and learning from the voices of other patients, I wanted to contribute to Scleroderma United’s Education Board, hoping to provide accessible resources for underrepresented communities and educate more students on the discussion revolving scleroderma. Outside of volunteering, she enjoys writing, reading, and spending time drawing. Chelsea worked under some advocacy initiatives before (ie. Dear Asian Youth, Zero Hour, Fridays for the Future) and wants to continue helping other youths find their voice.

My name is Chelsea, and I’m currently a student from California researching under the American College of Cardiology and a Harvard lab. After my aunt passed away from the autoimmune disease and learning from the voices of other patients, I wanted to contribute to Scleroderma United’s Education Board, hoping to provide accessible resources for underrepresented communities and educate more students on the discussion revolving scleroderma. Outside of volunteering, she enjoys writing, reading, and spending time drawing. Chelsea worked under some advocacy initiatives before (ie. Dear Asian Youth, Zero Hour, Fridays for the Future) and wants to continue helping other youths find their voice.

Relations Board Member

Nadia Ouhaj

Relations Board Member

Hi! I’m Nadia Ouhaj, and I am from Newburgh, NY. I am currently an undergraduate student at Duke University studying biology and global health. I joined Scleroderma United’s team to help advocate for those with Scleroderma as well as to gain a greater understanding of what these individuals face. I enjoy hanging out with friends, going hiking with my dogs, and exploring new cities.

Hi! I’m Nadia Ouhaj, and I am from Newburgh, NY. I am currently an undergraduate student at Duke University studying biology and global health. I joined Scleroderma United’s team to help advocate for those with Scleroderma as well as to gain a greater understanding of what these individuals face. I enjoy hanging out with friends, going hiking with my dogs, and exploring new cities.

Relations Board Member

Yahaya bin Basiron

Relations Board Member

Hidden gem of Asia, Malaysia is where I come from. As a 15-year-old exchange student currently a junior at Baltimore Polytechnic Institute and Kolej GENIUS Insan, I feel that there are still a lot of cures to be discovered for skin related diseases especially scleroderma and eczema. I am passionate about programming, volunteering, and giving back to the community.

Hidden gem of Asia, Malaysia is where I come from. As a 15-year-old exchange student currently a junior at Baltimore Polytechnic Institute and Kolej GENIUS Insan, I feel that there are still a lot of cures to be discovered for skin related diseases especially scleroderma and eczema. I am passionate about programming, volunteering, and giving back to the community.

Relations Board Member

Namira Mehedi

Relations Board Member

I am Namira, a junior at Harvard College. I am originally from Queens, New York. At Harvard, I am pursuing a concentration in Chemistry alongside a secondary in Sociology. I serve as the outreach director and advocacy project leader for the Menstrual Equity Coalition, director and peer counselor for Indigo Peer Counseling, director for Harvard Model United Nations, and the finance lead for Women in Medicine. I am passionate about health equity and nonprofit work in order to make healthcare more accessible for all. My desire to make a direct impact by merging my passions with nonprofit work led me to join Scleroderma United’s team. For fun, I enjoy reading, exploring other cultures, and visiting new places.

I am Namira, a junior at Harvard College. I am originally from Queens, New York. At Harvard, I am pursuing a concentration in Chemistry alongside a secondary in Sociology. I serve as the outreach director and advocacy project leader for the Menstrual Equity Coalition, director and peer counselor for Indigo Peer Counseling, director for Harvard Model United Nations, and the finance lead for Women in Medicine. I am passionate about health equity and nonprofit work in order to make healthcare more accessible for all. My desire to make a direct impact by merging my passions with nonprofit work led me to join Scleroderma United’s team. For fun, I enjoy reading, exploring other cultures, and visiting new places.