Kailua-Kona, Hawaii (United States)
Scleroderma Stories Issue 3
Please introduce yourself
My name is Tiaré Kelikoa‘elakauaikekai Tolzmann. I am 30 years old and live in Kailua Kona with my husband, Alvin. My parents, two brothers, maternal grandmother, and 3-year-old niece and nephew all live within a few miles. I am very close with my family, and they are a major source of support to me with my scleroderma.
How has your culture and heritage influenced your experience living with scleroderma?
What are your hobbies?
When were you diagnosed with scleroderma?
Could you please describe the symptoms you’ve developed since your diagnosis?
How has scleroderma affected your job and relationships?
What mindset or lifestyle changes have you made as a result of scleroderma?
Have changes to your physical appearance influenced your view of yourself?
What helps you get through difficult times?
As someone with scleroderma, have you had to make any special adjustments for the pandemic?
What are some of the medications you have taken?
Do you have a lot of scleroderma-related expenses?
Are you in any online scleroderma communities?
Have you met anyone else with scleroderma?
What are some of your goals or dreams for the future?
Be sure to follow us on Instagram and Facebook (@sclerounited) to see more scleroderma warriors’ journeys in our weekly Sclero Sunday series.
Are you a scleroderma warrior? We’d love to interview you for Scleroderma Stories! Please visit tinyurl.com/share-my-sclero-story or email us at firstname.lastname@example.org