Scleroderma Stories Issue 5
Please introduce yourself
My name is Rashmi Bhasin. I live in Mumbai, India, and I have been a patient of scleroderma since 2011. Before that, I had symptoms for three years but couldn’t get the right doctor because scleroderma is not commonly known in India. A lot of medical facilities are not capable of understanding the symptoms or correlating it to a disease. It took three years to get to a proper doctor, because even today in India mentioning a rheumatologist is seen as “an outsider doctor” because many don’t know what they do.
Right now, my foundation (Scleroderma India) is very important to me. It is my passion. I live and breathe my foundation.
What was it like being diagnosed in India, where scleroderma is very rare?
How did you feel after the diagnosis?
As you came to understand scleroderma, what were your biggest challenges?
Could you share more about your role in Scleroderma India?
What is something you’ve learned over time?
What symptoms have developed since your diagnosis?
Which symptoms are the hardest to deal with?
What treatments have you tried?
What does your day-to-day look like? How have you adapted?
How has your mindset changed?
How did scleroderma affect your career?
Has scleroderma changed the way you approached life?
Be sure to follow us on Instagram and Facebook (@sclerounited) to see more scleroderma warriors’ journeys in our weekly Sclero Sunday series.
Are you a scleroderma warrior? We’d love to interview you for Scleroderma Stories! Please visit tinyurl.com/share-my-sclero-story or email us at email@example.com