Scleroderma Stories Issue 5
Please introduce yourself
My full name is Nayanashree R. Sanikop, but my family and friends call me Naina. I live in Karnataka, which is in the south of India. I’m a 33-year-old software engineer working for an MNC as a test lead, and I’ve been fighting scleroderma for the past 16 years.
My journey has been pretty adventurous, and from the time of my diagnosis, I’ve always wanted to inspire people and help them lead a life with a positive attitude. I like to work on creating awareness about scleroderma, travel, and make friends. At the same time, I am career oriented.
What were your early symptoms, and when were you diagnosed?
As a high school student, how well did you understand what scleroderma was?
When did you try to learn more about scleroderma?
How have your symptoms progressed since then?
Could you please tell us about your stem cell treatment?
What has been your most challenging symptom?
Where do you find support?
What helps you navigate through difficult times?
How have you adapted to pursue your education and work goals?
Have you communicated with coworkers about scleroderma?
How has scleroderma affected your relationships?
What’s most challenging about living with scleroderma?
What lifestyle changes have you made?
Has scleroderma changed your approach to life or new things?
Has scleroderma’s effects on your physical appearance influenced your confidence?
Could you please describe your scleroderma-related medical expenses?
What are your hobbies?
Are you a member of any scleroderma communities?
What advice do you have for people with scleroderma or other chronic illnesses?
Be sure to follow us on Instagram and Facebook (@sclerounited) to see more scleroderma warriors’ journeys in our weekly Sclero Sunday series.
Are you a scleroderma warrior? We’d love to interview you for Scleroderma Stories! Please visit tinyurl.com/share-my-sclero-story or email us at email@example.com